Imagine this: your 2-year-old has a fever, a bit of a fast heartbeat, and seems to be coming down with a virus. The doctor checks them over and says everything looks okay-rest, fluids, paracetamol. But something doesn’t sit right with you. “He just doesn’t seem like himself,” you say. “I’ve never seen him this sick.” This is what happened to Jessica and her son Ryan, she took him home after he was checked over, but something still didn’t seem right. S0, she took Ryan back to the emergency department where they eventually found he had sepsis. Read Ryan’s story here
Ryan contracted Strep A and required multiple amputations after developing sepsis
Parental instinct has been a strong indicator of childhood sepsis and now, research is backing up that it has implications for other serious childhood illnesses as well. This is what many parents have always known: your instincts matter.
New Study Confirms Parental Instinct Is Key in Childhood Illness
A large study published in The Lancet Child & Adolescent Health looked at over 73,000 visits to children’s emergency departments. It found that when a parent or caregiver expressed concern about their child getting worse, that child was much more likely to need intensive care or even breathing support. Even if the child’s heart rate, breathing, or temperature seemed “fine” to medical staff, the parent’s gut feeling still proved to be one of the strongest indicators of serious illness.
Why parental instinct matters
You know your child best. You’ve seen every cold, every tantrum, every bedtime meltdown. So when something feels different-when it feels off-your concern deserves to be heard. This research is a powerful reminder to doctors and nurses that parental intuition is evidence too.
Tips for Parents: How to Make Your Concerns Heard by Doctors
If you’re worried, here are some ways to make your concern clear and be a strong advocate for your child: Use clear, confident language:
- “This feels different from their usual illnesses.”
- “I’m really worried-this is not their normal.”
- “I’ve never seen them this unwell.”
Describe what’s changed:
- Are they less responsive?
- Eating or drinking less?
- Breathing differently?
- More tired than usual?
Ask direct questions:
- “What signs should I look for that mean things are getting worse?”
- “What’s the plan if my child’s condition doesn’t improve?”
- “Can you explain what you’re looking for and why you’re not concerned?”
When Medical Staff Dismiss Your Concerns-What You Can Do
Sadly, some parents leave medical appointments still feeling uneasy. If this happens to you: Trust your gut. If you still feel worried, don’t wait-go back. Present again. You are not wasting anyone’s time. Ask for a second opinion. It’s okay to ask to speak to another doctor or a senior staff member. You’re allowed to advocate for a thorough review. Bring someone with you. If possible, have another adult come with you to help speak up and support you emotionally. Use hospital feedback or escalation systems. Many hospitals have a “patient escalation process” (sometimes called Ryan’s Rule or REACH in Australia) where families can ask for an urgent review if they’re concerned. Keep notes. Jot down what you observe, what was said, and when. It helps you track changes and speak clearly under stress.
Your Voice Matters-Here’s How It Can Change Medical Outcomes
You are your child’s biggest advocate-and often their first line of defence. This study is proof that speaking up makes a real difference. Your concern isn’t “just anxiety”-it could be the key that unlocks early treatment and better outcomes.
What This Research Means for Parents Everywhere
We hope you never have to be in this situation. But if you are-trust your instincts, speak up, and don’t back down.Your child is counting on you, and now the evidence shows: when parents speak, healthcare professionals should listen. 📖 Read more about the study in The Lancet Child & Adolescent Health here.